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    Fianna Fáil Challenges HSE on Rare Disease Drug

    28 minutes ago

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    The Fianna Fáil parliamentary party has expressed serious concerns over the HSE's recommendation to deny funding for Skyclarys, a drug for Friedreich's Ataxia. Signed by 48 members, the letter criticizes the reimbursement process as broken. The drug, which costs approximately €280,000 per patient annually, is the only approved treatment and has shown significant benefits.
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