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    Advocates Urge Government for Rare Disease Drug

    9 hours ago

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    People affected by Friedreich’s ataxia are calling on the Government and the HSE to cover the costs of the drug Skyclarys. This rare disease significantly impacts mobility and quality of life, and patients are pleading for access to this potentially life-changing medication. Advocates emphasize the urgent need for reimbursement to support those suffering from this condition.
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